Thank you all for praying for us this past week. We had to pack up and leave shortly after our doctor appointment on Friday; we got home about 10pm Friday night and went to a Hallelujah Acres seminar on Saturday morning in Shelby, NC. Sunday afternoon, we finally had a chance to rest from our trip. I am sorry that I haven't sent out an update before now.
This last week was a roller coaster of emotions: apprehension, anticipation, dread, hope, frustration, optimism, peace, uncertainty, sorrow, and contentment. We experienced all of them throughout the week and even going into the weekend after receiving the results of the scans.
Basically, there is not much change in the scan results from March 16th to May 30th/31st scans. This time around an MRI and bone scan were done which had not been done before. His brain scan was clear; his bone scan was clear. The PET scan revealed some difference. His esophagus appears to be normal now with metabolic activity. We do not have the results of the biopsies yet that the Gatroenterologist took during the scope, but he did say that everything in the esophagus appeared normal other than the scarring from the radiation. He still has metabolic activity in his spleen, right adrenal gland, and three lymph nodes. The spleen lesion is smaller than before but shows more metabolic activity. The right adrenal gland is slightly larger with more metabolic activity. There are still three lymph nodes involved, also exhibiting a little more metabolic activity than before. Rex noted some distinct differences in the procedures with the PET scan done in Tulsa, OK compared to his prior PET scans done here in Hickory. It is possible that the seemingly more thorough procedures in Tulsa could have produced more reliable results. So, did Rex really get a little worse or did he just get better results from a more thorough testing procedure?
About three weeks ago, Rex had a comprehensive blood panel done that showed levels consistent with hyperthyroidism. We are not sure how this connects with his cancer other than that we know that adrenal insufficiency can cause the thyroid to overcompensate.
So...while he still does not have pain, he exhibits/shows no sign of cancer in his esophagus and his energy/stamina increases daily, his prognosis is still the same - stage IV esophageal cancer, which according to the medical oncologist at Cancer Treatment Center typically carries a life expectancy of 6 months without chemo and 1 year with chemo. This does not take into account any other factors such as naturopathic treatment or nutrition or God's healing power. The oncologist also did not talk to us about any comparisons with prior scans. He seemed to not take any difference into account, possibly because the numbers were all close to the prior scan.
Where does that leave us? Quite frankly, we are not any more dependent on God than before cancer became a part of our lives; however, we are more cognizant of our dependence on Him. See, whether you show signs of sickness or not, your every breath is at the mercy of God and His will for your life. The level at which you embody this reality could be vastly different than the awareness that has been manifested or brought about in Rex' life.
What are we going to do now? We are seeking God for His direction for our lives. Physically, are we doing what is best to build Rex' immune system and body, as well as, our entire family's health? Spiritually, are we are serving God in the capacity that He wants our service?
Rex attempted to go to work this morning and couldn't bring himself to pull in the parking lot. He found himself at the prayer chapel pretty soon after. He needed a touch from God. Some of you remember when I emailed about his experience on April 30th during the Sunday morning service when he went to the prayer chapel to pray and meditate on some Psalms. Because it was the 30th, he went to Psalms 30. Well, today was similar. He needed to pray and meditate on Psalms. Again, since it is the 6th of June, he turned to Psalms 6. Just like before, God met Rex at his point of need. These two Psalms epitomize the same theme. When Rex read it the first time, he was in amazement as he realized the similarities in this Psalms to the Psalms he read April 30th.
Psalms 6
1 To the Chief Musician. With stringed instruments. On an eight-stringed harp. A Psalm of David. O Lord, do not rebuke me in Your anger, Nor chasten me in Your hot displeasure. 2 Have mercy on me, O Lord, for I am weak; O Lord, heal me, for my bones are troubled. 3 My soul also is greatly troubled; But You, O Lord--how long? 4 Return, O Lord, deliver me! Oh, save me for Your mercies' sake! 5 For in death there is no remembrance of You; In the grave who will give You thanks? 6 I am weary with my groaning; All night I make my bed swim; I drench my couch with my tears. 7 My eye wastes away because of grief; It grows old because of all my enemies. 8 Depart from me, all you workers of iniquity; For the Lord has heard the voice of my weeping. 9 The Lord has heard my supplication; The Lord will receive my prayer. 10 Let all my enemies be ashamed and greatly troubled; Let them turn back and be ashamed suddenly.
Psalms 30
1 A Psalm. A Song at the dedication of the house of David. I will extol You, O Lord, for You have lifted me up, And have not let my foes rejoice over me. 2 O Lord my God, I cried out to You, And You healed me. 3 O Lord, You brought my soul up from the grave; You have kept me alive, that I should not go down to the pit. 4 Sing praise to the Lord, You saints of His, And give thanks at the remembrance of His holy name. 5 For His anger is but for a moment, His favor is for life; Weeping may endure for a night, But joy comes in the morning. 6 Now in my prosperity I said, "I shall never be moved." 7 Lord, by Your favor You have made my mountain stand strong; You hid Your face, and I was troubled. 8 I cried out to You, O Lord; And to the Lord I made supplication: 9 "What profit is there in my blood, When I go down to the pit? Will the dust praise You? Will it declare Your truth? 10 Hear, O Lord, and have mercy on me; Lord, be my helper!" 11 You have turned for me my mourning into dancing; You have put off my sackcloth and clothed me with gladness, 12 To the end that my glory may sing praise to You and not be silent. O Lord my God, I will give thanks to You forever.
In the face of uncertainty and despair, God is faithful. He has allowed this, not for our demise, rather it is for His glory. Praise Him! Jesus is worthy of all praise! He is everlasting!
What is troubling you today? Have you released your worries to an infinite, Almighty God who has unlimited knowledge and understanding of everything and everyone or are you trying to handle it with your own finite abilities, with your limited understanding of what lies ahead. God is Worthy! Revere Him with the praise He is due regardless of your circumstances, regardless of that worry that you hold close to your heart. Release that worry and feel His peace and contentment in your life. He desires you to rest in Him.
Have a blessed day.
Donna Meadows
Showing posts with label PET scan. Show all posts
Showing posts with label PET scan. Show all posts
Tuesday, June 06, 2006
Thursday, June 01, 2006
Thursday, June 1, 2006
We completed the last test which was the scope (EGD); while Rex was getting prepped for it, the nurse told us that the doctor prays for his patients while they are going under sedation and continues to pray until they are sedated. The patients don't even hear the "Amen." True to her word, he did exactly that.
It typically takes 30 minutes to actually do this procedure. I was sweating it a little when they still hadn't called me 1 hour and 40 minutes later. That is similar to our previous scope when they found the mass. I started getting anxious and just began to pray and pray. Finally, the doctor called me. He couldn't find any evidence of a tumor; he did find some inflammation which is typical of radiation. He took many, many biopsies all up and down his esophagus to be thorough, as well as, to make sure there wasn't anything below the surface that he couldn't see. Overall, his esophagus looked very good to the doctor.
We will get the results of the bone scan, MRI, CT scan, and PET scan tomorrow morning. As of now, we are scheduled to fly back Friday afternoon/evening. Depending on the results, we both have the option of staying here and pursuing treatment for Rex. As of now, we plan to fly back Friday, regardless of the results.
Thank you for praying for us. We have had a blessed experience here.
I will write more later. We have another appointment to attend.
It typically takes 30 minutes to actually do this procedure. I was sweating it a little when they still hadn't called me 1 hour and 40 minutes later. That is similar to our previous scope when they found the mass. I started getting anxious and just began to pray and pray. Finally, the doctor called me. He couldn't find any evidence of a tumor; he did find some inflammation which is typical of radiation. He took many, many biopsies all up and down his esophagus to be thorough, as well as, to make sure there wasn't anything below the surface that he couldn't see. Overall, his esophagus looked very good to the doctor.
We will get the results of the bone scan, MRI, CT scan, and PET scan tomorrow morning. As of now, we are scheduled to fly back Friday afternoon/evening. Depending on the results, we both have the option of staying here and pursuing treatment for Rex. As of now, we plan to fly back Friday, regardless of the results.
Thank you for praying for us. We have had a blessed experience here.
I will write more later. We have another appointment to attend.
Monday, March 20, 2006
Monday, March 20, 2006
Well...I still don't have internet; we thought it was router instead it is the modem. We are trying to get it fixed.
Anyway, we got the results of the CT/PET scan today. There has been significant improvement in Rex' health. I have a copy of the results, so that I can give you the details.
The original CT/PET scan revealed to us that Rex had an 8 cm mass at the base of his esophagus leading into his stomach, several lymph nodes showing cancerous activity, an area in the spleen showing possible cancerous activity, and the adrenal gland on his kidney showing activity.
Now, for the current scan:
This CT part of the scan doesn't register a mass in the esophagus at all! The PET part of the scan shows that the SUV (sugar uptake value) has marked decrease. The SUV value on the first scan was an 18 and has decreased to a 3.1 -- so there is no mass to be seen but there are still cancer cells in there.
The lesion in the spleen has SUV values that have decreased from a range of 3.6 - 7.3 to a range of 1.7 - 3.5 -- if I understand this correctly, there is less cancer activity i.e. less cancer cells in the spleen -- again that is improvement.
There are two lymph nodes that have not changed in size, but again there was a mild decrease in sugar uptake on this exam compared to the prior exam. These two lymph nodes are located near the esophagus.
There is another lymph node that shows marked decrease in size and activity on this PET scan.
The lungs are clear; the liver and kidneys show no activity; no activity in the bones was seen.
Overall, we got a great report! This battle is not over yet, but great strides have been made toward eradicating this cancer.
Our next step is to meet with the surgeon. We really aren't sure what the next step will be. If there is no "mass" in the esophagus, it seems unnecessary to remove it. The spleen and adrenal gland may be what they want to remove. The Dr. was noncommittal about what to do next, so he wants us to see the surgeon here first, then the surgeon at Baptist before we take the next step. We asked if the Dr. would maybe want to do some more chemo before considering surgery. He wants us to talk to the surgeons first.
Thank you thank you thank you for all the prayers that you have lifted up on our behalf, particularly on Rex' behalf. God answers prayer! This is definite proof of that.
God's wisdom is just as important now as it was when Rex was first diagnosed. They weren't expecting this much improvement show it gives leeway in what to do next. I still would very much like to see surgery out of the picture, however, the invasive removal of the esophagus was really the dread in my heart. The removal of the spleen and adrenal gland doesn't seem to entail as much in surgery. We won't know more until we meet with the surgeons. Our appointment witht the surgeon here in Hickory is currrently scheduled for March 30th, but Dr. Tate's office wants us to meet with him sooner. So, they are trying to get us scheduled sooner.
Rex and I are very thankful to God for his love for us; he has certainly extended mercy and grace to us through all of this. We are just so very appreciative of that.
There have been some that have said, "Why Rex?" and even "Why not me instead of Rex?" Please understand that Rex and I fully believe that God is refining us, purifying us, and growing us for His glory. We are honored to be considered worthy or faithful or strong enough to carry this torch. It doesn't mean that it's not painful, and it certainly doesn't mean that it's easy to bear, and it doesn't mean that at times I don't want to bear it. What it does mean is that God wants to use this in the lives of us and others to draw people closer to the only hope we have in life and that hope is Jesus Christ.
There is deep maturity that can take place in our lives when these storms are harsh and when they are hard. Rex recently talked about the study of plant growth, and that the most growth takes place not when the rains are light and easy, but rather when the winds are the strongest and storms are harsh. That is a very good way to look at the storm we are going through. Whenever you encounter things in life that are difficult, you will have a response to it. You will either allow it to refine you, give you more character, make you a stronger person, and make you more like Christ or you will respond in anger, think it is unfair and refuse to "grow up." We have chosen to allow God to work in our lives and make us stronger, deepen our character and to mold us into usable vessels for Him.
We love you. Continue to pray for God's wisdom and guidance in our lives.
Donna Meadows
Anyway, we got the results of the CT/PET scan today. There has been significant improvement in Rex' health. I have a copy of the results, so that I can give you the details.
The original CT/PET scan revealed to us that Rex had an 8 cm mass at the base of his esophagus leading into his stomach, several lymph nodes showing cancerous activity, an area in the spleen showing possible cancerous activity, and the adrenal gland on his kidney showing activity.
Now, for the current scan:
This CT part of the scan doesn't register a mass in the esophagus at all! The PET part of the scan shows that the SUV (sugar uptake value) has marked decrease. The SUV value on the first scan was an 18 and has decreased to a 3.1 -- so there is no mass to be seen but there are still cancer cells in there.
The lesion in the spleen has SUV values that have decreased from a range of 3.6 - 7.3 to a range of 1.7 - 3.5 -- if I understand this correctly, there is less cancer activity i.e. less cancer cells in the spleen -- again that is improvement.
There are two lymph nodes that have not changed in size, but again there was a mild decrease in sugar uptake on this exam compared to the prior exam. These two lymph nodes are located near the esophagus.
There is another lymph node that shows marked decrease in size and activity on this PET scan.
The lungs are clear; the liver and kidneys show no activity; no activity in the bones was seen.
Overall, we got a great report! This battle is not over yet, but great strides have been made toward eradicating this cancer.
Our next step is to meet with the surgeon. We really aren't sure what the next step will be. If there is no "mass" in the esophagus, it seems unnecessary to remove it. The spleen and adrenal gland may be what they want to remove. The Dr. was noncommittal about what to do next, so he wants us to see the surgeon here first, then the surgeon at Baptist before we take the next step. We asked if the Dr. would maybe want to do some more chemo before considering surgery. He wants us to talk to the surgeons first.
Thank you thank you thank you for all the prayers that you have lifted up on our behalf, particularly on Rex' behalf. God answers prayer! This is definite proof of that.
God's wisdom is just as important now as it was when Rex was first diagnosed. They weren't expecting this much improvement show it gives leeway in what to do next. I still would very much like to see surgery out of the picture, however, the invasive removal of the esophagus was really the dread in my heart. The removal of the spleen and adrenal gland doesn't seem to entail as much in surgery. We won't know more until we meet with the surgeons. Our appointment witht the surgeon here in Hickory is currrently scheduled for March 30th, but Dr. Tate's office wants us to meet with him sooner. So, they are trying to get us scheduled sooner.
Rex and I are very thankful to God for his love for us; he has certainly extended mercy and grace to us through all of this. We are just so very appreciative of that.
There have been some that have said, "Why Rex?" and even "Why not me instead of Rex?" Please understand that Rex and I fully believe that God is refining us, purifying us, and growing us for His glory. We are honored to be considered worthy or faithful or strong enough to carry this torch. It doesn't mean that it's not painful, and it certainly doesn't mean that it's easy to bear, and it doesn't mean that at times I don't want to bear it. What it does mean is that God wants to use this in the lives of us and others to draw people closer to the only hope we have in life and that hope is Jesus Christ.
There is deep maturity that can take place in our lives when these storms are harsh and when they are hard. Rex recently talked about the study of plant growth, and that the most growth takes place not when the rains are light and easy, but rather when the winds are the strongest and storms are harsh. That is a very good way to look at the storm we are going through. Whenever you encounter things in life that are difficult, you will have a response to it. You will either allow it to refine you, give you more character, make you a stronger person, and make you more like Christ or you will respond in anger, think it is unfair and refuse to "grow up." We have chosen to allow God to work in our lives and make us stronger, deepen our character and to mold us into usable vessels for Him.
We love you. Continue to pray for God's wisdom and guidance in our lives.
Donna Meadows
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